An interventional study of Clinical Decision-Making Scenarios and Preferences Assessment in Adolescent Behavior, sponsored by Stanford University. Completed at 1 site in United States. Open to participants aged 15 Years to 29 Years, including healthy volunteers. Per ClinicalTrials.gov, last updated 2026-10-21.
Sponsored by Stanford University · Not applicable, Interventional, and Supportive care
The purpose of this mixed-methods study is to determine Adolescent and Young Adult (AYAs) decision making preferences post cancer diagnosis using vignettes designed to assess their preferred involvement in decisions about their cancer treatment and variables associated with these treatment decision-making (TDM) preferences.
305 studies on the registry are indexed under Adolescent Behavior; 47 are open to participants now.
This study's enrollment of 104 is below the median of 172 across 256 interventional studies indexed under Adolescent Behavior.
Browse Adolescent Behavior studies →Stanford University is the lead sponsor of 2,168 studies on the registry; 431 are open to participants now.
Of its 267 completed or terminated interventional studies of FDA-regulated products, 207 (78%) have results posted.
Counted across the registry records on this site, refreshed daily.
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Exclusion Criteria:
Participants will complete an electronic socio-demographic questionnaire followed by a set of hypothetical clinical decision-making scenarios to assess preferred decision-making roles and involvement of healthcare providers and family/friends. Responses will inform understanding of facilitators and barriers to shared decision-making.
Behavioral: Clinical Decision-Making Scenarios and Preferences Assessment
Participants complete a socio-demographic questionnaire and decision-making preferences scale, including hypothetical clinical scenarios, to identify their preferred decision-making role (active, collaborative, or passive) and the influence of providers or family. Delivered electronically via secure link; reminders sent as needed.
Distribution of Decision-Making Roles in Clinical Scenarios
Proportion of participants who select an active, collaborative, or passive role in hypothetical clinical decision-making scenarios. Each role will be counted and compared across participant subgroups.
Time frame: Within 2 weeks of survey link delivery
Association Between Sociodemographic Characteristics and Decision-Making Role
This outcome assesses the association between sociodemographic characteristics (e.g., age, race/ethnicity, gender, education level, and employment status) and adolescents' and young adults' preferred treatment decision-making role. Role preference (active, collaborative, or passive) is assessed using the modified Control Preferences Scale. Sociodemographic variables are self-reported via electronic questionnaire. The unit of measure is the chi-square test statistic or ANOVA output, depending on the variable type.
Time frame: At time of electronic survey completion
Concordance Between Interview Responses and Scenario-Based Decision-Making Roles
Proportion of interview responses that align with or differ from role preferences identified in hypothetical scenarios. Qualitative responses will be coded and categorized into roles for comparison.
Time frame: At time of interview, within 4 weeks of survey completion
Correlation Between Healthcare Encounters and Decision-Making Role Preference
This outcome measures the correlation between the number of cancer-related healthcare encounters and adolescents' and young adults' preferred treatment decision-making role. Healthcare encounters will be abstracted from the electronic health record and include clinic visits, procedures, hospitalizations, ICU stays, and emergency department visits. Decision-making role preference (active, collaborative, or passive) will be assessed using the modified Control Preferences Scale. The unit of measure is the Pearson correlation coefficient.
Time frame: At time of interview, within 4 weeks of survey completion
Ran from Aug 2022 to primary completion in Jul 2024, 22 months.
Of 195 non-industry interventional studies with no phase under Adolescent Behavior, half reached primary completion within 21 months of starting (the median), counting those still running; a quarter within 8 and three quarters within 43. This study's 22 months is close to that.
Counting every sponsor, half of 198 studies reached it within 20 months; a quarter within 8 and three quarters within 40.
Since we started tracking on Sep 25, 2026, the dates moved once, on Oct 21, 2026: primary completion Aug 2026 → Jul 2024 and completion Aug 2026 → Jul 2024.
Earlier changes are on the record history on ClinicalTrials.gov ↗
How these figures are worked out, and which studies are left out of them.
From the registry record's own update history. This site started tracking changes on Sep 25, 2026; for anything earlier, see the record history on ClinicalTrials.gov ↗
This study is completed, as verified in Sep 2026. You cannot join it, but the record below documents what was studied.
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