An interventional study of Self-Management Supported Telerehabilitation in Telerehabilitation, Juvenile Idiopathic Arthritis and Self-Management, sponsored by Pamukkale University. Completed at 1 site in Turkey. Open to participants aged 8 Years to 18 Years. Per ClinicalTrials.gov, last updated 2025-02-06.
Sponsored by Pamukkale University · Not applicable, Interventional, and Treatment
Juvenile idiopathic arthritis (JIA) is the most common chronic rheumatic disease of unknown etiology in childhood. JIA covers several different subgroups and is predominantly manifested by peripheral arthritis. Joint swelling, effusion, tenderness, pain in JIA; causes functional limitations, fatigue and quality of life disorders. Chronic inflammation limits the patient's daily activities and productivity. Self-management is defined as an individual's ability to manage their symptoms, treatment, lifestyle changes, and the psychosocial and cultural consequences of health conditions. Good self-efficacy and coping skills reduce the health and financial burden on the individual as well as on health care, benefiting society in general. Telerehabilitation is the dissemination of rehabilitation services through communication technologies. In the literature, it is seen that the studies on internet-based exercise applications are limited. In the studies, people were encouraged to physical activity with an internet-based application and the benefits of being active were given within the scope of patient education, and it was reported that the level of physical activity effectively improved as a result. It can also increase endurance, has been reported to be safe and feasible. In our study, unlike the literature, the self-management program and exercise applications will be integrated into the internet-based telerehabilitation method, based on the fact that the exercise practices in JIA are effective in disease management and improvement of symptoms. Therefore, in our study; the effectiveness of telerehabilitation-based exercise methods to be applied additionally synchronously and asynchronously to self-management education in children and adolescents with JIA on pain, disease activity, functional status, fatigue, quality of life, psychosocial status, self-efficacy and satisfaction will be examined and compared.
3,554 studies on the registry are indexed under Arthritis; 317 are open to participants now.
This study's enrollment of 26 is below the median of 90 across 2,377 interventional studies indexed under Arthritis.
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Exclusion Criteria:
On the basis of telerehabilitation, before starting both synchronous and asynchronous exercise therapy, a comprehensive self-management program will be provided. Self-management training will be shared online synchronously with the participants in this exercise group. The exercise program will consist of functional exercises focused on trunk stabilization, including warm-up and cool-down periods, 3 times a week for 12 weeks, and will be performed online by the physiotherapist. Exercise training will be completed with a 10-minute warm-up exercise followed by 40-minute trunk stabilization and functional exercises for the upper and lower extremities, followed by a 10-minute cooling-down program consisting of flexibility exercises. Progression in exercise training will be done by increasing the number of repetitions and adding elastic bands to the exercises.
Other: Self-Management Supported Telerehabilitation
Self-management training will be delivered to the participants in this exercise group via video and they will be asked to watch it. The exercise program will consist of functional exercises focused on trunk stabilization, including warm-up and cool-down periods, 3 times a week for 12 weeks, and will be shared with the participants through videos taken by the physiotherapist. Exercise training will be completed with a 10-minute warm-up exercise followed by 40-minute trunk stabilization and functional exercises for the upper and lower extremities, followed by a 10-minute cooling-down program consisting of flexibility exercises. Participants will be checked weekly by phone to determine exercise tracking. Progression in exercise training will be achieved with new videos that include an increase in the number of repetitions of the participants and the addition of elastic bands to the exercises.
Other: Self-Management Supported Telerehabilitation
Supporting the exercises with an internet-based environment and self-management training for Children and Adolescents with Juvenile Idiopathic Arthritis
Juvenile Idiopathic Arthritis Disease Activity Score (JADAS)
It assess the disease activity in patients with JIA.
Time frame: Change from baseline to three months
Childhood Health Assessment Scale (CHAQ)
It assess the children's functional ability over the past week.
Time frame: Change from baseline to three months
Pediatric Quality of Life Inventory (PedsQL) 3.0 Arthritis Module
It assess the patient's quality of life in pediatric arthritis.
Time frame: Change from baseline to three months
Pediatric Quality of Life Inventory Multidimensional Fatigue Scale (PedsQL-F)
It assess the fatigue in children.
Time frame: Change from baseline to three months
Numeric Rating Scale
It assess the pain.
Time frame: Change from baseline to three months
5 times sit and stand test
It assess the functional status, muscle strength an endurance.
Time frame: Change from baseline to three months
6-Item Self-Efficacy Scale for Managing Chronic Diseases
It assess the self-efficacy in patients with chronic diseases.
Time frame: Change from baseline to three months
The Juvenile Arthritis Biopsychosocial and Clinical Questionnaire -JAB-Q
It assess the biopsychosocial status in JIA patients.
Time frame: Change from baseline to three months
Plan to share: No
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This study is completed, as verified in Feb 2025. You cannot join it, but the record below documents what was studied.
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Pamukkale University