An observational study in X-linked Hypophosphatemia, sponsored by Orthopedic Hospital Vienna Speising. Completed at 1 site in Austria. Open to participants aged 16 Years to 100 Years. Per ClinicalTrials.gov, last updated 2023-10-10.
Sponsored by Orthopedic Hospital Vienna Speising · Observational
This study aimed to characterize foot pathologies using X-rays and clinical examination and assess related outcome scores in adolescents and adults with X-linked Hypophophatemia
A single center, cross-sectional analysis of adolescent and adult patients with XLH with and without previous surgical intervention was performed at the Orthopaedic Hospital Speising, Vienna, Austria. Clinical examination, quality of life questionnaires and radiographic data of foot x-rays in standing position were collected. Radiographic evaluation was performed to analyze foot deformity as well as signs of osteoarthritis at the foot.
49 studies on the registry are indexed under Familial Hypophosphatemic Rickets; 8 are open to participants now.
This study's enrollment of 28 is below the median of 50 across 16 observational studies indexed under Familial Hypophosphatemic Rickets.
Browse Familial Hypophosphatemic Rickets studies →Orthopedic Hospital Vienna Speising is the lead sponsor of 9 studies on the registry; 2 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Patients with rare bone disease (XLH) with and without foot problems
Inclusion Criteria: - Patients with confirmed XLH, ≥ 16 years were invited to participate in this study
Exclusion Criteria:
Radiographs of ankle and foot anteroposterior/dorsoplantar were taken in standing position with a centralized beam on the ankle joint.
The American Orthopedic Foot and Ankle Society Score (AOFAS- midfoot section and 1st Forefoot ray, Forefoot ray 2-5) and the foot function index (FFI) were assessed
Number of feet with signs of osteoarthritis
radiographic signs of osteoarthritis at the foot joints
Time frame: baseline
Plan to share: No
No publications or documents are linked to this record.
This study is completed, as verified in Oct 2023. You cannot join it, but the record below documents what was studied.
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Familial Hypophosphatemic Rickets →
Orthopedic Hospital Vienna Speising