An observational study in Rheumatoid Purpura, sponsored by Groupe Hospitalier de la Region de Mulhouse et Sud Alsace. Completed at 2 sites in France. Open to participants aged 0 Years to 18 Years. Per ClinicalTrials.gov, last updated 2025-11-20.
Sponsored by Groupe Hospitalier de la Region de Mulhouse et Sud Alsace · Observational
The main objective of this study is to describe the management of children with rheumatoid purpura from admission to the pediatric emergency room to follow-up by primary care physicians after hospital discharge.
Secondary objectives The secondary objective is to assess general practitioners current knowledge and practice of the condition and potential barriers to monitoring and follow-up by general practitioners.
Conduct of research Children diagnosed with rheumatoid purpura within the past 2 years at the 3 participating sites will be included in the study if parental authority holders do not object.
Patients will be identified through the Medical Information Department of each hospital.
Parents will be contacted - first by mail, then by phone - to request permission to collect the child's medical data from medical records, and to retrieve information on the surveillance and follow-up of the disease by general practitioners up to two years after diagnosis.
36 studies on the registry are indexed under IgA Vasculitis; 12 are open to participants now.
This study's enrollment of 66 is below the median of 300 across 17 observational studies indexed under IgA Vasculitis.
Browse IgA Vasculitis studies →Groupe Hospitalier de la Region de Mulhouse et Sud Alsace is the lead sponsor of 27 studies on the registry; 3 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Patients will be identified by the Medical Information Department of each site. The study will be conducted on patients who have been managed for rheumatoid purpura within the last two years at one of the three participating centers.
Go through the criteria one by one — yes, no or not sure — and take the list to your doctor or the study team. Kept in this browser only.
Exclusion Criteria:
- Patient followed in the context of a genetic or malformative pathology, an immune deficiency, or a cancer
Children diagnosed with rheumatoid purpura from admission to the pediatric emergency department up to two years of follow-up by general practitioners after hospital discharge.
Other: Management of rheumatoid purpura
Collection of data on the management in pediatric emergency departments (method of diagnosis, complementary examinations, proposed treatment, number of hospitalizations, follow-up after hospital discharge).
Compliance with the recommendations for the management of rheumatoid purpura
Time frame: Up to two years after hospital discharge
Knowledge assessment questionnaire regarding rheumatoid purpura
Evaluation of the knowledge and current practices of general practitioners regarding rheumatoid purpura and identification of the possible obstacles to management and follow-up in primary care, using an online survey
Time frame: At the beginning of the study
This study is completed, as verified in Oct 2023. You cannot join it, but the record below documents what was studied.
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Groupe Hospitalier de la Region de Mulhouse et Sud Alsace