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CompletedNCT02753452Updated Mar 11, 2022

Optimizing Life Success Through Residential Immersive Life Skills (RILS) Programs for Youth With Disabilities

An interventional study of Residential Immersive Life Skills programming and Non-residential life skills programming in Child-onset Disability, sponsored by Holland Bloorview Kids Rehabilitation Hospital. Completed at 1 site in Canada. Open to participants aged 14 Years to 21 Years. Per ClinicalTrials.gov, last updated 2022-03-11.

Sponsored by Holland Bloorview Kids Rehabilitation Hospital · Not applicable, Interventional, and Other

From the registry’s dates

  • Registered 11 months after the study started (first participant enrolled May 2015, registered Apr 2016).
Phase
Not applicable
Study type
Interventional
Enrollment
29
Allocation
Non-randomized
Ages
14 Years to 21 Years
Sex
All
01

Study summary

In Canada, between 3.6% and 7.7% of children under 19 years old are thought to have a chronic health condition that results in disability or limits to activity. These young people have difficulty finding jobs, attending school, living independently, and forming relationships with other people. These poorer life outcomes are partly the result of a lack of life skills. Life skills include the ability to solve problems and set goals, which allows youth to deal with the demands of everyday life. Several children's treatment centres in Ontario offer short-term residential immersive life skills (RILS) programs to provide youth with these life skills to help them take on adult roles. RILS programs are very promising in terms of making a long-term difference in youths' lives because they provide a place where youth can learn by doing, working with peers and taking risks in a safe environment. However, we do not yet know how well skills that are learned in RILS programs are kept up as time passes or how well RILS programs support broader skills, such as the ability to make one's own choices.

The proposed research will examine these issues and will ask the following questions:

  1. What opportunities are youth given when they participate in RILS programs? What specific strategies do RILS service providers use to support youth in learning life skills?;
  2. How do youth experience and perceive their participation in a RILS program, before, during and after they take part? What do their parents expect and experience in terms of their child's participation?; and
  3. What changes do youth experience, particularly in terms of their ability to make choices for themselves and their sense of being able to cope with things that come up in their lives? The study will involve youth from several treatment centres in Ontario over the next three years.

Youth who are attending RILS programs will be compared with:

  1. youth who are similar to the RILS youth, but who are taking part in a life skills program that is not residential;
  2. youth who applied to a RILS program and were accepted, but who will take part in the program in a different year; and
  3. a group of youth who are similar to the RILS youth but who are not taking part in any life skills program.

Youth will provide data at four time points: before the program starts, immediately after the program finishes, three months after the program is over and 12 months after the program is over.

02

Conditions studied

  • Child-onset Disability

Keywords

  • youth
  • disability
  • transition
  • life skills
  • adolescence
03

In context

Lead sponsor

Holland Bloorview Kids Rehabilitation Hospital is the lead sponsor of 62 studies on the registry; 12 are open to participants now.

Counted across the registry records on this site, refreshed daily.

04

Who can participate

Ages eligible
14 Years to 21 Years
Sexes eligible
All
Accepts healthy volunteers
No

Inclusion criteria

  • All youth must be between 14 and 21 years of age, have a child-onset disability, be able to set goals for themselves, and speak English.
  • Parents who are enrolled must speak English.

Exclusion criteria

Exclusion Criteria:

  • Youth with severe behavioral issues will be excluded, since these would restrict the youth's ability to participate in a group learning experience.
05

Study design

Phase
Not applicable
Primary purpose
Other
Allocation
Non-randomized
Intervention model
Parallel assignment
Masking
None (open label)
Enrollment
29 participants (actual)

Study arms

  • Active comparator
    Residential Immersive Life Skills group

    Youth will take part in a residential life skills program of between one and three weeks, consisting of formal workshops, peer learning, outings in the community, one-on-one coaching and daily living tasks carried out with peers (e.g. cooking, laundry, grocery shopping).

    Behavioral: Residential Immersive Life Skills programming

  • Active comparator
    Non-residential life skills program

    Youth will take part in programs focusing on increasing specific life skills, but taking place only during the day (i.e. non- residential).

    Behavioral: Non-residential life skills programming

  • No intervention
    Deferred RILS applicants

    Youth who applied to a Residential Immersive Life Skills program but are deferred to a subsequent year. These youth are included as a comparator group to match the motivation level required to apply to a RILS program.

  • No intervention
    No life skills program

    Youth who did not apply or take part in any group life skills program. These youth provide a diagnosis and age matched comparator group.

Interventions

  • BehavioralResidential Immersive Life Skills programming
  • BehavioralNon-residential life skills programming
06

What researchers measure

Primary outcomes

  1. Change in Arc's Self-Determination Scale scores

    Time frame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention

Secondary outcomes

  1. Change in General Self-Efficacy Scale scores

    Time frame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention

07

Study locations

1 site
  • Holland Bloorview Kids Rehabilitation Hospital
    Toronto, Ontario M4G 1R8, Canada
08

References and documents

Publications

  • McPherson AC, King G, Rudzik A, Kingsnorth S, Gorter JW; Ontario Independence Program Research (OIPR) team. Optimizing life success through residential immersive life skills programs for youth with disabilities: study protocol of a mixed-methods, prospective, comparative cohort study. BMC Pediatr. 2016 Sep 6;16(1):153. doi: 10.1186/s12887-016-0694-7. PubMed 27600167 ↗

Individual participant data

Plan to share: No

09

Updates

Tracking since Sep 25, 2026
No changes since tracking began. The registry record was last updated on Mar 11, 2022, before this site started recording changes on Sep 25, 2026. Its history is on ClinicalTrials.gov ↗
10

Registry details

Key details

Study ID
NCT02753452
Lead sponsor
Holland Bloorview Kids Rehabilitation Hospital
Collaborators
ErinoakKids Centre for Treatment and Development, McMaster Children's Hospital
Responsible party
Sponsor
First posted
Apr 27, 2016
Start date
May 2015
Primary completion
Mar 31, 2021
Completion
Mar 31, 2021
Last update
Mar 11, 2022

Study contacts

Gillian King, PhD
principal investigator · Holland Bloorview Kids Rehabilitation Hospital
Amy C McPherson, PhD
principal investigator · Holland Bloorview Kids Rehabilitation Hospital

Oversight

Data monitoring committee
No
View the source record on ClinicalTrials.gov ↗

Not currently enrolling

This study is completed, as verified in Mar 2022. You cannot join it, but the record below documents what was studied.

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