An interventional study of Residential Immersive Life Skills programming and Non-residential life skills programming in Child-onset Disability, sponsored by Holland Bloorview Kids Rehabilitation Hospital. Completed at 1 site in Canada. Open to participants aged 14 Years to 21 Years. Per ClinicalTrials.gov, last updated 2022-03-11.
Sponsored by Holland Bloorview Kids Rehabilitation Hospital · Not applicable, Interventional, and Other
In Canada, between 3.6% and 7.7% of children under 19 years old are thought to have a chronic health condition that results in disability or limits to activity. These young people have difficulty finding jobs, attending school, living independently, and forming relationships with other people. These poorer life outcomes are partly the result of a lack of life skills. Life skills include the ability to solve problems and set goals, which allows youth to deal with the demands of everyday life. Several children's treatment centres in Ontario offer short-term residential immersive life skills (RILS) programs to provide youth with these life skills to help them take on adult roles. RILS programs are very promising in terms of making a long-term difference in youths' lives because they provide a place where youth can learn by doing, working with peers and taking risks in a safe environment. However, we do not yet know how well skills that are learned in RILS programs are kept up as time passes or how well RILS programs support broader skills, such as the ability to make one's own choices.
The proposed research will examine these issues and will ask the following questions:
Youth who are attending RILS programs will be compared with:
Youth will provide data at four time points: before the program starts, immediately after the program finishes, three months after the program is over and 12 months after the program is over.
Holland Bloorview Kids Rehabilitation Hospital is the lead sponsor of 62 studies on the registry; 12 are open to participants now.
Counted across the registry records on this site, refreshed daily.
Exclusion Criteria:
Youth will take part in a residential life skills program of between one and three weeks, consisting of formal workshops, peer learning, outings in the community, one-on-one coaching and daily living tasks carried out with peers (e.g. cooking, laundry, grocery shopping).
Behavioral: Residential Immersive Life Skills programming
Youth will take part in programs focusing on increasing specific life skills, but taking place only during the day (i.e. non- residential).
Behavioral: Non-residential life skills programming
Youth who applied to a Residential Immersive Life Skills program but are deferred to a subsequent year. These youth are included as a comparator group to match the motivation level required to apply to a RILS program.
Youth who did not apply or take part in any group life skills program. These youth provide a diagnosis and age matched comparator group.
Change in Arc's Self-Determination Scale scores
Time frame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention
Change in General Self-Efficacy Scale scores
Time frame: Baseline, 1 week post intervention, 3 months post intervention, 12 months post intervention
Plan to share: No
This study is completed, as verified in Mar 2022. You cannot join it, but the record below documents what was studied.
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Holland Bloorview Kids Rehabilitation Hospital