An interventional study of UMFollowUp and Standard of Care in Cancer Survivor, sponsored by Masonic Cancer Center, University of Minnesota. Completed at 1 site in United States. Open to participants aged 15 Years to 28 Years. Per ClinicalTrials.gov, last updated 2017-12-02.
Sponsored by Masonic Cancer Center, University of Minnesota · Not applicable, Interventional, and Supportive care
This is a randomized controlled trial of a web-based informational intervention (UMFollowUp) for adolescent and young adult survivors of childhood cancer to improve cancer knowledge and psychosocial functioning.
Individuals randomly assigned to the control group will receive standard of care for the duration of their participation. This means they will continue to receive information regarding their diagnosis, treatments and ongoing health needs from their provider (no access to website).
Individuals randomly assigned to the treatment group will receive access to UMFollowUp, a secure, HIPAA-compliant website.
All participants will be asked to complete paper-and-pencil surveys at baseline and 9 months later to determine the impact of the web-based intervention.
Masonic Cancer Center, University of Minnesota is the lead sponsor of 284 studies on the registry; 34 are open to participants now.
Of its 39 completed or terminated interventional studies of FDA-regulated products, 28 (72%) have results posted.
Counted across the registry records on this site, refreshed daily.
Exclusion Criteria:
UMFollowUp - web-based internet resource for information about their diagnostic histories, recommendations for follow-up care, and tips to enhance their treatment, psychosocial and physical well-being.
Behavioral: UMFollowUp
Patients will receive information regarding their diagnosis, treatments, and ongoing health needs from their provider, but will not be provided access to the website.
Other: Standard of Care
Web-based internet resource for self-reported treatment summaries and psychosocial and physical well-being.
Patients will receive information regarding their diagnosis, treatments, and ongoing health needs from their provider, but will not be provided access to the website.
Cancer Knowledge Survey
Measure of patient reported knowledge of their cancer diagnosis, history and treatments.
Time frame: Time of Enrollment and 9 Months Later
SF-36 Questionnaire
A measure of quality of life.
Time frame: Time of Enrollment and 9 Months Later
Cancer Rehabilitation Evaluation System
Short Form (SF) Medical Interaction Subscale
Time frame: Time of Enrollment and 9 Months Later
Herth Hope Index
A measure of self-reported hope.
Time frame: Time of Enrollment and 9 Months Later
Multidimensional Scale of Perceived Social Support
A measure of self-reported social support.
Time frame: Time of Enrollment and 9 Months Later
Health Locus of Control Scale
A measure of self-reported locus of control.
Time frame: Time of Enrollment and 9 Months Later
State Trait Anxiety Inventory
A measure of self-reported anxiety.
Time frame: Time of Enrollment and 9 Months Later
This study is completed, as verified in Nov 2017. You cannot join it, but the record below documents what was studied.
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Masonic Cancer Center, University of Minnesota