Massachusetts General Hospital: Neurofibromatosis 1 trials

The registry lists 15 Neurofibromatosis 1 studies with Massachusetts General Hospital as lead sponsor. 2 are open to participants now and 1 have results posted.

Early Phase 1 1Phase 1 5Phase 2 1No phase 8(a study in two phases counts in both)

Studies

Open to participants first, then studies with results posted, then the rest; newest registration first within each.

• Tailoring an Online Platform to Promote Evidence-Based Care for Adults With Neurofibromatosis 1 and Low Health LiteracyRecruitingNCT07233408Not applicable
• Assessing the Efficacy of Repeat, Monthly Treatments of Deoxycholate for NF1 Associated Cutaneous Neurofibromas (cNFs)Enrolling by invitationNCT06300502Phase 1
• AZD2014 In NF2 Patients With Progressive or Symptomatic MeningiomasCompletedNCT02831257Phase 2Results posted
• Assessing the Efficacy of Repeat, Monthly Treatments of Alexandrite Laser for NF1-associated Cutaneous Neurofibromas (cNFs)SuspendedNCT06934928Not applicable
• A Decentralized Clinical Trial to Promote Evidence-Based Care for Underserved Patients With Neurofibromatosis 1CompletedNCT06262113Not applicable
• Efficacy of Skin Cooling in Reducing Pain Associated With Non-invasive Treatments of Neurofibromatosis Type 1 Cutaneous NeurofibromasCompletedNCT06132165Phase 1
• Dosing and Tolerability of Deoxycholic Acid Vs. Polidocanol in the Treatment of Neurofibromatosis Type 1 Cutaneous NeurofibromasCompletedNCT06120036Phase 1
• Tolerability of Device Based Therapies for Neurofibromatosis Type 1 Cutaneous NeurofibromasCompletedNCT04730583Phase 1
• Resiliency Training for Adults With Neurofibromatosis Via Live VideoconferencingCompletedNCT03406208Not applicable
• Resiliency Training for Patients With NF2 Via Videoconferencing With SkypeCompletedNCT02811718Not applicable
• Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With NFCompletedNCT02435628
• Resiliency Training for Adolescent Neurofibromatosis Patients Via Videoconferencing With SkypeCompletedNCT02387177Not applicable
• Resiliency Training for Patients With Neurofibromatosis Via Videoconferencing With SkypeCompletedNCT02298270Not applicable
• Topical Imiquimod 5% Cream for Treatment of Cutaneous Neurofibromas in Adults With Neurofibromatosis 1CompletedNCT00865644Phase 1
• Ranibizumab for Neurofibromas Associated With Neurofibromatosis 1CompletedNCT00657202Early Phase 1