Kartagener Syndrome clinical trials
The registry lists 21 studies for Kartagener Syndrome across more than 10 countries. 4 are recruiting or about to start. 16 of them are mainly about Kartagener Syndrome (how this is decided). Per ClinicalTrials.gov, last updated 2026-06-29.
Get an email when these change. Save the Kartagener Syndrome studies recruiting or about to start — once a week, free: studies that open, close, add sites or post results.
See an example email
Example · made-up studies
Breast cancer · Recruiting: 2 came in, 3 changed
What changed in your saved searches, Oct 31 – Nov 6:
A study of drug A after surgery for early breast cancer
Came in · now Recruiting
Drug B with hormone therapy in advanced breast cancer
Changed
· Sites: 4 added, including Seoul and Busan
· Enrollment: 300 → 450 participants
Exercise during chemotherapy
Now Active, not recruiting
One email a week for all your saved searches. Stop any time.
Phase
- Phase 1
- 3
Who runs them
University of North Carolina, Chapel Hill (8) · ReCode Therapeutics (4) · University of Bern (3) · Hacettepe University (2) · Assistance Publique - Hôpitaux de Paris (1) · Centre Hospitalier Universitaire Vaudois (1) · Centre Hospitalier Intercommunal Creteil (1) · National Institute of Allergy and Infectious Diseases (NIAID) (1)
Coming up
Studies recruiting or running, from their records. “Main data collection” ends at the primary completion date, the sponsor’s own estimate, which often moves.
The study
- Jun 2027Pathogenesis of Primary Ciliary Dyskinesia (PCD) Lung Disease · University of North Carolina, Chapel Hill
Who these studies take
Of the 4 Kartagener Syndrome studies recruiting now, 4 (100%) set no upper age limit and 0 (0%) stop at 75 or younger. 3 (75%) take children under 18. 0 (0%) are for women only and 0 (0%) for men only; 1 (25%) take healthy volunteers.
| Age | Women | Men |
|---|---|---|
| 10 | 3 (75%) | 3 (75%) |
| 18 | 4 (100%) | 4 (100%) |
| 30 | 4 (100%) | 4 (100%) |
| 40 | 4 (100%) | 4 (100%) |
| 50 | 4 (100%) | 4 (100%) |
| 65 | 4 (100%) | 4 (100%) |
| 75 | 4 (100%) | 4 (100%) |
| 85 | 4 (100%) | 4 (100%) |
Across all 21 studies, recruiting or not: 52% stop at 75 or younger and 33% at 65; 71% take children; 0% are for women only and 0% for men only; 19% take healthy volunteers. From each study’s registry entry; the criteria on its page decide.
Studies
Recruiting first, then most recently updated. Showing 21 of 21. search them.
- Pathogenesis of Primary Ciliary Dyskinesia (PCD) Lung DiseaseRecruitingNCT008074821 country
- Bronchi Dilation in Polynesian Patients: Monocentric Retrospective StudyRecruitingNCT047989501 country
- The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)RecruitingNCT046115161 country
- Swiss Primary Ciliary Dyskinesia RegistryRecruitingNCT036062001 country
- A Longitudinal, Observational Study of Primary Ciliary Dyskinesia in AdultsCompletedNCT056851861 country
- Study of Inhaled RCT1100 in Adults With PCD Caused by Pathogenic Mutations in the DNAI1 Gene to Measure Mucociliary ClearanceCompletedNCT06633757Phase 13 countries
- Longitudinal Characterization of Respiratory Tract Exacerbations and Treatment Responses in Primary Ciliary DyskinesiaCompletedNCT051618582 countries
- International Primary Ciliary Dyskinesia CohortActive, not recruitingNCT035178651 country
- A Study to Assess the Safety, Tolerability, Ciliary Rescue, and Pharmacodynamics of RCT1100 in Adults With PCDCompletedNCT06600425Phase 11 country
- Characterizing the Upper Airway Manifestations in Primary Ciliary Dyskinesia and Primary ImmunodeficienciesCompletedNCT049190182 countries
- Defining the Genetic Etiology of Suppurative Lung Disease in Children and AdultsCompletedNCT047022432 countries
- Study Evaluating the Safety and Tolerability of RCT1100 in Healthy and PCD SubjectsCompletedNCT05737485Phase 14 countries
- Physical Fitness, Exercise Capacity and Activities of Daily Living in Primary Ciliary Dyskinesia: a Retrospective StudyCompletedNCT050406071 country
- Rare Genetic Disorders of the Breathing AirwaysCompletedNCT003231672 countries
- Genetics of Primary Ciliary DyskinesiaCompletedNCT023890492 countries
- Effect of Game Based Approach on Oxygenation, Functional Capacity and Quality of Life in Primary Ciliary DyskinesiaCompletedNCT03832491Not applicable1 country
- Evaluating Progression of and Diagnostic Tools for Primary Ciliary Dyskinesia in Children and AdolescentsCompletedNCT004509182 countries
- Long-term Lung Function and Disease Progression in Children With Early Onset Primary Ciliary Dyskinesia Lung DiseaseCompletedNCT007228782 countries
- Dyskinesia, Heterotaxy and Congenital Heart DiseaseCompletedNCT006085561 country
- Determination of Normal Values of Nasal Nitric Oxide in AdultsCompletedNCT021335471 country
- Diagnosis of Primary Ciliary DyskinesiaCompletedNCT007838871 country